It's been 4 days since his surgery and he's doing so much better. I asked him today if his feeding tube was bothering him and he said "not at all". He doesn't seem to be favouring his neck as much and he can finally look down at his CVC site - for the first couple days; he would nearly cry looking down at his chest. It's quite a change, but he's happy that he won't have to get "poked" anymore.
His mood flips from one extreme to the other pretty quickly. Today, he was doing his best to dance around to a little song he was singing and a few minutes later he was yelling at us for no reason. He puts on such a brave face almost all of the time and we know how truly traumatizing this all is for him to go through. He amazes me every second with this strength and how he lives each minute without dwelling on his sickness. He is very angry and he has every right to be. It's hard for him to figure out how to deal with the emotions and to even understand why he has these feelings. He's only 5 and he's missed out on so much already in just these past few months.
"Courage is resistance to fear, mastery of fear - not absence of fear"